Wyatt’s Story

They say that sometimes real superheroes live in the hearts of small children fighting big battles. Two year old Wyatt Kenton Ewing is a perfect example of a superhero. At 11 months old, Wyatt was diagnosed with a very rare form of cancer called Alveolar Rhabdomyosarcoma. This type of cancer is diagnosed in only about 350 people per year in the US. His tumor was located on his left nostril and his initial scans showed evidence of the cancer in one of the lymph nodes near his lower jaw as well. Thankfully, there was no other evidence of the cancer throughout the rest of his body.

Just 18 days before his first birthday, Wyatt was given his first dose of chemotherapy. He went through what can only be described as hell for the next 10 months as he took on his frontline battle with this cancer. He endured endless pokes, hideous infusions of toxic chemotherapy, countless trips to the ER with neutropenic fevers, more blood and platelet transfusions than one can count, and the most brutal radiation therapy that you could imagine. Wyatt spent more of his second year of life in the hospital, than he did out of it. For more than 9 months, Wyatt’s big brother Rhett (4 years old at that time) had to live with his grandparents while Wyatt and his parents moved to an apartment closer to John’s Hopkins and spent most of their time in the hospital there.

Despite the pain and suffering he went through, Wyatt was always smiling. He had (and still has) a way of lighting up a room and there is no one who has met him who does not love him. Wyatt finally finished his frontline chemotherapy/radiation protocol on April 20th, 2021 and he was officially deemed to be in remission when he had clear scans on May 6th, 2021.

On February 14th, 2022 Wyatt’s parents lives were shattered yet again when they learned that their deepest worries and fears had become a reality. The bone marrow sample that had been taken on 2/11/22 showed that Wyatt has Therapy Induced Acute Myeloid Leukemia (t-AML). As a result of the chemotherapy that he received to treat his Rhabdomyosarcoma, his bone marrow was damaged and unable to repair itself properly resulting in the Leukemia. For the second time in their lives they heard the words “your son has cancer” and there is truly no way to put into words the pain and horror that they felt hearing that again. Their beautiful, full of life, happy and seemingly healthy two year old now has to undergo hell again just to hopefully save his life… and they were told it will be even more intense this time, which how could that even be possible.

Wyatt has already received chemo in his spinal fluid and started his systemic chemo on February 24, 2022. He will be undergoing intensive chemotherapy, with the hopes that he can get into remission in 1-2 cycles. Once in remission, they will then hopefully move forward with the process of bone marrow transplant, which involves more chemo and a whole new set of risks and fears. With leukemia treatment, children like Wyatt are kept in the hospital the entire cycle (4+ weeks) because the chemo causes their blood counts to drop so low and stay down for so long that they typically need many transfusions of blood and platelets and they are at extremely high risk for infections as they have no immune cells whatsoever. On top of that, Wyatt already almost lost his life to a disease called veno-occlusive disease (VOD) where his liver was severely damaged by a chemotherapy drug – and that was such a rare side effect of that drug it wasn’t even listed on the consent form that was signed.  Now, he will need to receive another drug that does actually have that listed as a concern and VOD is something that is known to happen during the bone marrow transplant process as well. Wyatt’s parents are terrified and the doctors have even said they are nervous, but will be taking every precaution they can to prevent, or detect that early in him if it happens.

Wyatt is the strongest and most incredible two year old, and we all know in our hearts that he will win this war one day. Until then, Wyatt has a team of warriors in his family, friends, and all of those who are supporting him that will help carry him, his parents, and his big brother through these battles. His parents are so incredibly grateful to each and every person who has offered them love, prayers, and support through this difficult time and hope that everyone will continue to pray for their little boy and all the children who are fighting these unfair battles.

Donations can be made to Wyatt Ewing through: